New support service for dementia patients and their families launches

St Barnabas Hospice, Dementia UK and Lincolnshire County Council join together to provide Lincolnshire with six trained health practitioners, called Admiral Nurses.

Admiral Nurses are all qualified nurses with a professional specialism in dementia. Admiral Nurses work together with families to provide the one – to one support, expert guidance and practical solutions they need to live more positively with dementia each and every day.

Their clinical knowledge and skills help prevent crisis and build carers resilience which in turn supports families to maintain quality of life and a sense of control. They also work alongside other professionals in the dementia care pathway, sharing best practice.

Sarah Bedward, Admiral Nurse at St Barnabas Hospice says;

“The most important part of an Admiral Nurse’s job is to work with the families and the person living with dementia. If we do a good job we prevent unnecessary admissions to hospital, improve people’s quality of life, help people live at home for much longer and also enhance their wellbeing

Research shows that for people living with dementia, their wellbeing and general health is affected is their carer is experiencing a lot of stress. For that reason, I’m really looking forward to working with families, helping to build positive relationships and focussing on reducing carer’s stress.”

The pilot service is supported by two leading charity organisations St Barnabas Hospice and Dementia UK and financially sustained by Lincolnshire County Council for 12 months.

Michelle Webb, Director of Patient Care at St Barnabas Hospice says;

“I am delighted to welcome the new Admiral Nurses to the Hospice. We have enjoyed working alongside Lincolnshire County Council and Dementia UK over the past year to create this two year pilot and it is a pleasure to see the team in post and the strategy being realised.

I see this as such an important development for dementia care services in Lincolnshire and I look forward to seeing it make a positive impact for our patients and their families.”

Mandy Crabtree, Admiral Nurse at St Barnabas Hospice says;

“Admiral Nursing is a service that is desperately needed in Lincolnshire. Having worked as a district nurse, I used to visit many patients and find that often either they were living with dementia or their relative was. It has such a huge impact on their whole life and their family’s lives.”

 

BRAND NEW Mighty Mudder Event

Get ready for some muddy fun and over 60 obstacles as St Barnabas Hospice prepares to host Lincolnshire’s first Mighty Mudder event later this year.

The Hospice has introduced the 5k obstacle course to help raise vital funds to support end-of-life care locally. The event will take place at Ancaster Leisure, Wood Lodge from 10am on Sunday, September 22, 2019.

Participants will be able to run through fields of mud, crawl through tunnels, swing through trees, slide down 50ft drops, wade through muddy water and battle their way up hills.

They will be set off in waves of 100, which they can pre-select online when signing up. There is plenty to do for friends and family members including places around the course to stand and watch.

Events Fundraiser at St Barnabas Hospice Melissa Gaffney said: “I started working for the Hospice earlier this year and I’m so excited to be launching this brand new event already. In my spare time, I often take part in mass participation sporting events, so it’s great that I can bring this passion to our event.

“Since joining St Barnabas, I’ve met so many amazing people who come together at these events to raise money in memory of loved ones, reach personal goals or to have fun. Mighty Mudder is the perfect event for those wanting a challenge that’s a little different, whether you want to raise sponsorship money or not.”

Ticket information

St Barnabas will offer two different types of ticket. Participants wanting to raise money for the Hospice will be able to pay a lower registration fee of £25 providing the pledge a minimum sponsorship of £50.

Alternatively they can pay a £55 registration fee if they decide not to raise sponsorship money. These are early bird prices and will be available for a limited time until Sunday, July 28.

Children aged 14-17 can take part for a flat rate of £10 with one adult per two children when signing up.

 

Fraser’s Story

One of our fantastic supporters, Fraser Oliver, who is taking on a triathlon for us, was in the top 3% of fundraisers on the whole of JustGiving for the month of May 2019! Congratulations to Fraser on this amazing achievement.

Here is Fraser’s story:

“As many of you that are reading this may know, last year I lost my father. A heart shattering event, that I never expected to deal with in my 20’s. He was a fit and healthy 54 year old, whom I cherished as a best mate and spent much of my spare time going on holidays and adventures with.

He fought a short, stoic battle with an extremely rare and aggressive cancer. So short in fact, that we had very little opportunity to get anything in place or planned for when the unimaginable happened. Fortunately for us, the incredible St Barnabas Hospice exists.

On the 30th of June 2018, he suddenly deteriorated and we were informed that he had hours to live. Knowing he would have hated to pass away in the chaos of A&E. The inspiring staff at St Barnabas went out of their way to accept him and offer all of us the peace and space we needed to let him graciously leave us.

For this, my family and I will be forever grateful and want to do anything we can to give something back. Starting with a little triathlon.

Anything you can give will be greatly received by the organisation and the people and families that they will support now and in the future.”

We’d like to say a huge thank you to Fraser! Support his triathlon on JustGiving here and help him reach his fundraising goal for St Barnabas: www.justgiving.com/fundraising/fraser-oliver

We are going to the Lincolnshire Show!

St Barnabas Hospice will be attending the Lincolnshire Show, in partnership with Age UK Lincoln and South Lincolnshire, Lincolnshire Housing Partnership, LACE Housing and Lincolnshire Home Independence Agency as ‘Lincs Independent Living Partnership’ {LILP}

The five charities will create a support hub for Lincolnshire Show attendees to learn more about their combined services that could dramatically improve independent living and living with a life limiting illness. Representatives from each charity will be on hand with tea, coffee and biscuits and information about how to get involved and access each service on Stand 11, Eighth Avenue.

Families and friends of anyone with Dementia will be given the chance to join a Dementia Friends session, which will be running on Wednesday and Thursday at 1.30pm. These short sessions are designed to educate people around Dementia and encourage Dementia friendly communities.

In addition, Lincolnshire Housing Partnership (LHP) will be demonstrating the latest ‘assistive technology products’, which promote independence and safety for Dementia patients and promoting their low level support services, living well with dementia and specialist housing available in Lincolnshire.

Bev Chapman, Business Development Officer at LHP says;

“As one of Lincolnshire’s premier providers of social housing, with 12,700 properties across the county, we aim to support the whole community. A large part of our work involves developing services, which enable people to live in a secure, safe and happy environment and our presence within the Support Hub is a reflection of that.”

LACE Housing will be showcasing its new developments for over 55s in Washingborough and Nettleham. Colleagues from the organisations will also be on hand to offer advice about its different types of affordable housing within Lincolnshire and the surrounding area, including independent living and Extra Care Schemes.

You can also find out more about LACE Housing’s award winning 4* holiday apartment in the coastal resort of Skegness, which was recently named among the country’s best seaside spots. In addition to this, plans for the new housing developments in Nettleham and Washingborough, offering specialist facilities at affordable prices will be available from the LACE team.

St Barnabas Hospice CEO Chris Wheway, Volunteer Ambassador Anita and Wellbeing Community Engagement Lead Laura Stones will be representing the county’s largest Hospice facility.

 

Laura Stones explains;

“St Barnabas Hospice supports 10,500 people each year, which includes our patients but their families and carers too. Our wellbeing services include complimentary therapies, welfare and benefits advice and pre bereavement support. Patients can be in our care for years and their families for much longer. We want to make sure people know we are here for them, even if their loved one has not accessed our Hospice care.

Find us at stand 11, Eighth Avenue with LILP to learn about our free services, the well-being care and how to get involved.

June is our birthday month too, so we are celebrating with Go Yellow. We will be spreading a little sunshine to get you all involved in fundraising for and celebrating the Hospice. Our Fundraisers are joining the Waterside Shopping Centre to offer some yellow themed activities perfect for the young, and young at heart!”

 

Debbie Kinnell, Communications and Business Development Officer from Lincolnshire Home Independency Agency continues;

‘We will be there to advise on home adaptations, improvements and repairs to help people live independently at home.  We can also offer advice and support on grants, benefits and funding.  We’re currently delivering three funding schemes to help ensure gas and electrical safety and keep homes warm in winter (subject to eligibility).

 

Michele Jolly, CEO at Age UK adds;

“It often feels as though Age UK Lincoln and South Lincolnshire is one of Lincolnshire’s best kept secrets!  We are a hidden gem of support services there to advise and support older people and their families and carers. Join us at the Age UK stand for information about the vast array of services and support we have available in Lincoln and South Lincolnshire for the 50 plus age group.”

 

Visit the Support Hub on Stand 11, Eighth Avenue on Wednesday 19th and Thursday 20th June, at the Lincolnshire Show.

 

Admiral Nurse Pilot begins

I am delighted to welcome the new Admiral Nurses to the  Hospice today. We have enjoyed working alongside Lincolnshire County Council and Dementia UK over the past year to create this two year pilot and it is a pleasure to see the  team in post and  the strategy being realised. I see this as such an important development for  dementia care services in Lincolnshire and I look forward to seeing  it make a positive impact for our patients and their families.”

Michelle Webb
Director of Patient Care at St Barnabas Hospice

The Admiral Nurse service will be available in Autumn. More information on how to access this support is coming soon.

 

 

 

 

 

Paula and Tom’s Story

“The care they gave my husband Tom and me was incredible. St Barnabas will be a part of my life forever.”

 

My Tom was strong, physically and mentally. In his late seventies, he was still down the gym three days a week! Bu the cancer he got from asbestos exposure robbed him of all that. By the end, he was subdued, frightened, quiet and scared.

I’d looked after him at home for most of that year – but by late October his pain was so great we had to come to the Hospice. They welcomed us as the door and we could feel the calmness, the serenity and the brightness of the ward which made it feel homely.

Our lovely nurse Emma took my hand and said “Don’t worry, we’ll make sure he’s OK.”

They found me a room, which gave us six days we had there together. I sat with him every day and when Tom was unsettled during the night they’d come and get me. On the last day they found a room so I could stay with Tom the whole time. He needed a huge cocktail of drugs, given to him through a syringe driver – I know Sue is asking people for help to buy more of these. This was a life saver for Tom.

His days at St Barnabas were peaceful and calm. When he passed, October 31st last year (three days after our wedding anniversary), I was there with him, holding his hand.

After Tom passed, I was distraught. But even after Tom’s death, the Hospice was there for me. Through their bereavement services, they held my hand, supporting me whilst i explored my feelings, in a safe space. The Hospice helped me every step of the way – from the minute me and Tom entered the Hospice, to this very day. They are now my extended family, and I am thankful for them all.

I hope everyone in the community realises how privileged and honoured we are to have Sue, her nursing team and the consultants to look after us on our journey, as well as the the counsellors that provide bereavement support – and will join me in supporting her appeal.

Paula Dean.

To find out what’s on Sue’s Wish List;

Sue’s Wish List

Floral display blooms raising £90,000

Throughout April 2019 the first 1,300 flowers were displayed in a Forget Me Not design at Lincoln Castle. Thousands of visitors enjoyed the display of iron, handmade Forget Me Not flowers on the grass banks of the Castle throughout Easter.

Ellen Kelman, Corporate Hospitality Officer at Lincoln Castle

“We were delighted to be able to support St Barnabas with their forget me not campaign. The flowers looked great in the castle grounds, and knowing that they were in support of such a worthwhile cause made the display even more special. It was fantastic that the castle was able to help make the campaign such a success.”

The iron, handmade flowers offer supporters the chance to remember a loved one with a Forget Me Not, whilst raising valuable funds for the charity. This appeal is the first of its kind for St Barnabas, and has surpassed all our expectations raising over £90,000 from 2000 dedicated flowers.

On the final days of the display, supporters were invited to collect their pre-ordered flowers from the castle and display them in their own homes and gardens.

Sam Waterer, St Barnabas Individual Giving Fundraiser says;

“We had high hopes for the appeal, but we are overwhelmed by the response. The Forget Me Not project has been a year in the planning and I can honestly say it has surpassed all our expectations.

Throughout the appeal we have had some emotional conversations with people dedicating flowers in memory of family, friends and even pets. In addition, some donations have been dedicated to people who they love and they want to let them know they are appreciated.”

Jenny Peake, Individual Giving and Data Manager for St Barnabas Hospice continues;“We want to say a huge thank you to Lincoln Castle and to our sponsors Tanglewood Care Homes and Waterside Shopping Centre for all of their help and support in making this happen. I’d also like to thank Stefanos and Roz at The Old Smithy for designing and making our Forget Me Nots non-stop since January!

We hope that everyone loves the Forget Me Nots as much as we do. It is a beautiful way to remember a loved one and also raises vital funds for the Hospice. These funds will allow us to continue providing high quality care for patients and their families and carers across Lincolnshire.”

Forget Me Not flowers are still available on the St Barnabas Hospice website for a donation to the charity.

For more information about the Forget Me Not appeal, please visit the St Barnabas Hospice website at StBarnabasHospice.co.uk/fmn or contact Sam Waterer, Individual Giving Fundraiser on 01522 540 300.

The 2019 Inflatable Colour Dash supported by Western Power Distribution hits fundraising target milestone

The Inflatable Colour Dash is supported by Western Power Distribution for the fifth year.

The 2019 fun filled, messy 5K run, held at the Lincolnshire Showground will see 2,500 people raising vital funds for St Barnabas Hospice. The runner’s efforts will bring the total fundraised figure to £750,000. All the donations will go towards offering free, compassionate end of life care to the people of Lincolnshire.

Western Power Distribution says;

“As well as our dedication to keeping the lights on, we are committed to supporting the local communities that we serve across our region. We’ve been supporting St Barnabas Hospice for over six years now and this is our fifth year of sponsoring the Colour Dash.

We are so delighted that the event continues to be supported by so many people each year and are proud to support it once again. Over the last five years of the Colour Dash it has raised a phenomenal £750,000 and is down to the efforts of the organisers at St Barnabas and everyone who has taken part and raised money.

We do hope that you all enjoy the event this year and continue to support St Barnabas.”

Caroline Swindin, Corporate and Community Lead continues;

We would like to say a huge thank you to Western Power Distribution for another year of incredible support.

Event sponsorship from corporate partners, such as Western Power Distribution and event sign ups and fundraising from over 10,000 runners has given us the chance to offer more people in Lincolnshire a dignified death whether that is at home, or in the Hospice. Mass participation events such as the Colour Dash support us in reaching our £5.5 million fundraising target each year.

Thank you to everyone who has chosen to support us and if you have not yet signed up, there is still time.”

The Inflatable Colour Dash pre event sign up is open until Sunday 5th May 2019 from the St Barnabas website www.StBarnabasHospice.co.uk. Sign up is from £10. Suitable for all ages, from 5 years. On the day sign up is subject to availability.

 

About Western Power Distribution

For more information about us, please visit www.westernpower.co.uk

Western Power Distribution is the electricity distributor for much of Lincolnshire, from Mablethorpe to Holbeach, as well as the rest of the East Midlands, West Midlands, South West England and South Wales.

We deliver electricity 24 hours a day to over 7.9 million customers over a 55,500 square kilometre service area. We invest heavily into the electricity network – the pylons, substations, cables and wires that deliver electricity to homes and businesses – and are there to put things right when there is a power cut.

 

New Palliative Care Workshops

Lincolnshire’s largest Hospice facility, St Barnabas cared for 10,500 people in 2018 and expects to support even more this year. The Hospice has endeavoured to educate people about their holistic style of care with brand new bite-size courses.

Training has always been an essential part of developing a caring and compassionate team at the St Barnabas Hospice Trust. The organisation now wants to use their experience and expertise to develop the wider palliative and end of life community.

With over 200 clinical staff supporting end of life patients the St Barnabas team are sharing their knowledge with Lincolnshire’s community of Clinicians and at home carers. The ‘open to all’ bite-sized courses vary from a few hours, to two day workshops covering Well being, Cognitive Behavioural Therapy, Person Centered Care and Advanced Care Planning.

A message from the Education Team;

These courses are open to everyone who may have an interest in developing their knowledge and skills in supporting patients and families at end of life; they can enable individuals to have interactions both with knowledge and emotional depth.

We can offer training at your place of work or at our hospices, matched to your workforce needs.  Topics covered include:

  • Advanced Care Planning
  • Mindfulness
  • Dying to Communicate
  • Frailty
  • Cognitive Behavioural Therapy
  • Symptom Control

To find out more and book your place visit www.stbarnabashospice.co.uk/Education

Video Conferencing improves palliative and end of life care in Lincolnshire 

St Barnabas Hospice supports 10,500 people each year, but with Project ECHO, a worldwide initiative to improve care for end of life patients they have already assisted hundreds more in Lincolnshire.

Project ECHO, launched in the US state of Mexico allows clinicians to work from their base and reach out to multiple heath providers through video conferencing.

St Barnabas clinicians have adopted this concept and are engaging with Lincolnshire care homes. The key objective is to share their vast wealth of knowledge of caring for patients who have a life limiting illnesses.

The Lincolnshire care homes that the Hospice has worked with over six months have a total of 432 nursing and residential beds. As Project ECHO continues the potential to support thousands more end of life, elderly patients with better care is possible.

Nicky Ingall, Clinical Services Business Manager explains;

“We are stronger together” is never truer in the health care system. With increasing pressures on resources, supporting our peers with knowledge and experience is more critical than ever. There’s no denying that technology, such as video conferencing has a crucial role to play in this. That is where Project ECHO comes in.

This project breaks down traditional barriers, like time restraints and ‘expert to non-expert’ teaching hierarchies. We have a network of clinicians, nursing staff and carers all sharing their own experiences.

For example, in a care home the health care assistant is often more of an expert on a particular patient than the palliative care expert based miles away.”

Nicky continues;

“We are grateful to everyone who entered into the spirit of Project ECHO with gusto. The engagement between us, St Barnabas and all 12 care homes has been overwhelmingly positive. We want to thank our first group of care providers who have trusted us and given us their time.

The project is still in its infancy, but a six month review has shown unanimous positive feedback from everyone involved. The care homes have a new network of support and knowledge of how St Barnabas, such as Hospice at Home can assist them in caring for their residents better.”

Helen Reilly, from Oakdene Care Home spoke highly of the impact Project Echo has had on her own confidence to support the residence in her care;

“We now have a toolkit to take away with us and share with our teams. Every person’s wishes and health issues are different, but I personally now feel better informed to make sure the care is patient centered. St Barnabas has taught me to concentrate on the person’s wishes, as end of life care focuses on comfort for them and their family.”

If you would like to know more about Project ECHO, or gain further information about the services St Barnabas offer visit www.stbarnabashospice.co.uk