Mighty Mudder: Jane’s Story

Jane Montague, Director of Majestic Publications, is raising money  for St Barnabas when she runs the Hospice’s Mighty Mudder mud run, which takes place on Sunday 22nd September at Ancaster Leisure near Grantham.

Jane and her son Ben are running in memory of her Dad and in support of hospice care.

Jane has been a supporter of the hospice movement for over twenty years. She is the director of Majestic Publications, an organisation that provides free publications for hospices and charities nationwide.

Jane said:

“Hospices are the most special of places. The reason that we started Majestic Publications was because my darling Dad, Bob Manifold, died after a short battle with a cancerous brain tumour in December 1997 at the age of 59. He had been a fit and healthy man and the life and soul of any gathering.

His loss completely devastated us as a family but we were buoyed up and supported by our local hospice in Chester who were amazing. The pain that comes from losing someone you love can never be diminished but our local hospice helped us to feel that we weren’t on our own.”


In addition, Jane takes on incredible challenges to show her support to the Hospices that Majestic Publications supply to.

Jane said:

“As soon as someone says that there’s no way I could undertake something, I go out of my way to prove them wrong. This has resulted in me running about six 10ks, a sprint triathlon, Morecombe Bay Walk, flying through the air on the longest zip wire in Europe, taking part in the Dragon Boat Race (last year dressed as a chicken!), abseiling down the Liverpool Metropolitan Cathedral and even the challenge of giving up alcohol for a month!

“I am by no means an athlete but it’s amazing what a bit of determination can achieve.”

Jane’s next challenge will be the Mighty Mudder: a new addition to the St Barnabas events calendar featuring a 5K route at Ancaster Leisure including over 50 muddy obstacles.

Jane said: “Something that was instilled in me when I was growing up was that you always need to give back. In turn this is something that I’ve tried to bring my son, Ben, up to understand and carry through.”

“We’re also looking forward to a bit of quality mother and son time, although I think Ben is hoping that I’ll be so out of breath that it will stop me nagging him about tidying his room!”

New for this event, St Barnabas has decided to offer two different types of tickets. Participants wanting to raise money for the Hospice will be able to pay a lower registration fee of £25, providing they pledge a minimum sponsorship of £50. Alternatively, participants can pay a £55 registration fee if they decide not to raise sponsorship money. These are early bird prices and will be available for a limited time until Sunday 28th July.

Children aged 14-17 can also take part for a flat rate of £10 and are encouraged to raise as much money as they are able. The Hospice does ask that there is one adult per two children when signing up.

Early bird tickets are now on sale for this exciting new event. To sign up or view more information, visit the event page. 

“My life changed that winter. You became our angels.”

On 11th September 2018, Hilary Horn from Holbeach was diagnosed with bowel cancer. Three weeks later she was told it was terminal and she sadly died on 9th November 2018, age 62.

Hilary’s daughter, Alison, has chosen to share her memories of the time Hilary spent in our care. Alison said:

“Mum was in Boston Pilgrim Hospital but decided in the October that she wanted to come home to be with my dad for a few days, before choosing Holbeach Hospital as the place she wished to die. However, after a few days at home we realised we could manage with the help of St Barnabas Hospice.

“Nurses from St Barnabas came to the house daily to change Mum’s clothes, sheets and also look after Dad. My life changed that winter, you became our angels. “I had never heard of St Barnabas before but I now support them as my chosen charity.”

Hilary was able to spend three-and-a-half weeks at home with her family and every day St Barnabas nurses were able to come in and help ease the pressure. Because of St Barnabas, Hilary was also able to die peacefully in her own home. Alison said:

“I have so many memories of the nurses who came. There were endless cups of tea and their presence meant we could leave the house briefly, knowing Mum was in safe hands. I remember asking questions that could only be answered with a hug and another cuppa. The help we received meant so much to our family.”

St Barnabas Hospice provides free care to people across Lincolnshire living with a life-limiting or terminal illness and their families and carers. To find out more about the different ways we can help, visit www.stbarnabashospice.co.uk

Dog walkers encouraged at this year’s Moonlight Walk Stamford

St Barnabas Hospice is welcoming dog walkers to this year’s Moonlight Walk Stamford in September.

Taking place on Saturday 14th September, the second Moonlight Walk Stamford hosted by St Barnabas Hospice is welcoming both humans and dogs to walk in memory of loved ones. The Moonlight Walk Stamford will begin at Borderville Sports Centre, with doors opening to the public at 7.30pm.

Reggie the Cockerpoo took part in the Moonlight Walk Lincoln earlier this year with his owner, Debbie, who he really helped through a difficult time. Debbie’s husband, Richard Braunton, was diagnosed with stage four Frontal Lobe Glioblastoma in January 2017 and sadly died in March 2018, age 49. Debbie said:

“We initially thought St Barnabas was just somewhere you go to die. Little did we know what amazing support, care and activities they offer to both patients and their families and carers.

“Whilst he was able, Rich went to do Tai Chi at the Lincoln Day Therapy Centre. Although sometimes he struggled, we still managed to get him there just to chat to someone outside of family and friends. We also had lunches there with family which was lovely.

“As Rich became more poorly, he was admitted for respite care to the Hospice, where he was so well looked after.”

Debbie also received a lot of free support from St Barnabas, both during and after Richard’s illness. Debbie said:

“I was given a course of reflexology as a way to relax. This was lovely and a great way to unwind for an hour to myself.

“After Rich died, I decided, in the end, to go to the counselling group which was really beneficial. Overall, St Barnabas staff and volunteers were truly supportive for me and our family at such a difficult time.”

“St Barnabas offers such varied support and is a sanctuary to go to talk and show emotions which I didn’t want to show my family as I felt I had to be strong for them.

“Although they have volunteers, they are a charity and as such, need money to continue to offer support to other families in similar circumstances to my own.

“In life, we never know what lies ahead of us and we never think that tragedy could strike so early. To know that St Barnabas is there to be our backbone in these circumstances is a massive thing and I would urge everyone to support the Hospice. I never imagined I would be in this position.”

Louise Cotton, Events Fundraiser for St Barnabas Hospice, said:

“Debbie’s story has moved us all at St Barnabas and it’s lovely to know that Reggie was able to help her through such a difficult time. We look forward to meeting lots of dogs like Reggie at this year’s Moonlight Walk Stamford, but there are a couple of rules.

“Please make sure dogs are kept on non-retractable leads, they must be friendly and sociable with people and with other dogs.”

It’s not too late to sign up to this year’s Moonlight Walk Stamford. People aged 11+ can sign up at www.stbarnabashospice.co.uk/moonlight-walk-stamford-2019. If you sign up before Sunday 21st July, you will also be able to take advantage of the early bird prices!

Fraser’s Story

One of our fantastic supporters, Fraser Oliver, who is taking on a triathlon for us, was in the top 3% of fundraisers on the whole of JustGiving for the month of May 2019! Congratulations to Fraser on this amazing achievement.

Here is Fraser’s story:

“As many of you that are reading this may know, last year I lost my father. A heart shattering event, that I never expected to deal with in my 20’s. He was a fit and healthy 54 year old, whom I cherished as a best mate and spent much of my spare time going on holidays and adventures with.

He fought a short, stoic battle with an extremely rare and aggressive cancer. So short in fact, that we had very little opportunity to get anything in place or planned for when the unimaginable happened. Fortunately for us, the incredible St Barnabas Hospice exists.

On the 30th of June 2018, he suddenly deteriorated and we were informed that he had hours to live. Knowing he would have hated to pass away in the chaos of A&E. The inspiring staff at St Barnabas went out of their way to accept him and offer all of us the peace and space we needed to let him graciously leave us.

For this, my family and I will be forever grateful and want to do anything we can to give something back. Starting with a little triathlon.

Anything you can give will be greatly received by the organisation and the people and families that they will support now and in the future.”

We’d like to say a huge thank you to Fraser! Support his triathlon on JustGiving here and help him reach his fundraising goal for St Barnabas: www.justgiving.com/fundraising/fraser-oliver

“The nurses spoke to, rather than at or about, Mum and they cared for her as if she was a member of their own family.”

Melanie Taylor, owner of a HR Consultancy business, has chosen to share her experience of the care that her Mum, Maureen Dennis, received from St Barnabas Hospice.

Maureen was diagnosed with lung cancer in November 2017 and sadly died at home on 3rd February 2018, age 82. Melanie said:

“Mum and Dad were both really upbeat about Mum’s diagnosis, saying that there was a lot of support available.

“Mum had opted not to have treatment for her cancer as she had seen friends undergo treatment which had significantly impacted on their quality of life. She wanted to carry on as normal and receive palliative care to ensure that she wasn’t in pain. This brave decision allowed us to have more quality time together without the focus of hospital visits and treatment regimes.”

After Maureen’s decision not to have treatment, she was referred to St Barnabas Hospice to discuss the support they could provide. Melanie said:

“Mum wanted to die in her own home, so my sisters and I supported my dad to care for her there. In the last few weeks of her life, the Hospice at Home team visited regularly to support us as a family. They helped with personal care, allowing Mum more dignity than having to be washed by her children or husband, and this allowed us to revert back to being family, rather than carers.

“The care received from St Barnabas was fantastic. The Hospice at Home nurses were always cheerful and respectful. They spoke to, rather than at or about, Mum and they cared for her as if she was a member of their own family. They read the mood of the house and then supported us accordingly – whether that was to have a bit of a laugh or to console us during a tearful moment.”

Two weeks before Maureen died, she celebrated her 82nd birthday with a traditional party tea like the ones she used to make for Melanie and her sisters when they were children. Maureen’s brother also came to visit and they were able to spend quality time together as a family. Melanie said:

“I remember one of the nurses asking us to make sure we’d left Mum’s perfume out so that they could put some on after she’d been washed. Their level of compassion, going beyond the basics, really touched our family.

“It would be easy to think that caring for someone at the end of their life is morbid or difficult. Whilst I’d be lying if I said we didn’t have tough moments, I also remember lots of happy times when we were able to spent time with Mum.

“Because we were at home, Mum was surrounded by everything familiar, even down to photo albums that we could get out and look through with her. It was a sad time, but also a very special time.”

St Barnabas Hospice provides free care to people across Lincolnshire living with a life-limiting or terminal illness and their families and carers. To find out more about the different ways we can help, visit www.stbarnabashospice.co.uk

Lincs FM presenter set to run Colour Dash after care his ex-partner is receiving

John Marshall; Lincs FM presenter, along with his daughter Eleanor will be running the Inflatable Colour Dash, as John and his family are experiencing the St Barnabas Hospice care first hand.

John has been supporting Angela, his ex-partner and Eleanor’s mother with her cancer diagnosis since 2016. Angela is currently in the care of St Barnabas Hospice.

John explains;

“Angela is many things; 48, my ex-girlfriend, an amazing mother to our daughter Eleanor, my best friend and terminally ill. 

In 2016 Angela underwent surgery and follow up treatment following a breast cancer diagnosis, a year or so later she needed further surgery to remove all the lymph nodes under her left arm as well as part of her chest muscle, where it had also spread. Fast forward to 2019 and Angela is diagnosed with stage four secondary cancer in her lungs and bones, her treatment is now palliative.  Angela has a constantly swollen and painful left arm, a condition known as lymphedema, often struggles to walk or breathe properly. For the last few years both she and Eleanor have been living with me as we attempt to prepare for the future both myself and Eleanor will inevitably face.

Recently Angela was given a place at St Barnabas Hospice in Lincoln where she remained for over three weeks; the goal was to achieve some degree of pain management and to hopefully build her up a little. I’ve mentioned St Barnabas events for many years on the radio but until seeing close up what they do I have been very green to it all, I suspect this is true for many of you reading this text. The hospice isn’t just a place that people go to die, Angela isn’t at that point yet, she’s not good, she may not experience many ups, and may have plenty of downs on the road ahead, but I cannot praise the Hospice enough for all they’ve done for her, it truly is a place of immense support and comfort.

Until now only my closest friends have known of Angela’s situation but in the hope of raising awareness and some much needed funds for the Hospice it feels like the right time to change that.

I’ve mentioned St Barnabas events for many years on Lincs FM but until my recent spell seeing exactly what they do up close I really didn’t appreciate the amazing service being provided. I’ll be running the Colour Dash at the Lincolnshire Showground on May 11th with my 13 year old daughter Eleanor. I hope you will support us.

Thank you,

John xxx

Come and join us and run shoulder to shoulder in support of this amazing local charity, places are limited so sign up today! Visit www.stbarnabashospice.co.uk/ICD19

“If I could have one more day with Dad, I’d hold him once more and tell him just how much I love him”

Jamie Aspland, Branch Manager at Pygott & Crone in Sleaford, has been part of a phenomenal fundraising attempt in support of St Barnabas Hospice. To date, the company has raised over £7,000 for the Hospice and this total is still increasing.

Sadly, on 27th November 2016 Jamie’s dad, Nigel, died age 63 after being diagnosed around six months earlier with terminal cancer. Nigel spent many weeks being cared for by our Hospice at Home team before choosing to spend his last 29 days in our Hospice in the Hospital at Grantham.

Jamie was lucky to work for such a supportive company who allowed him the time to look after his dad when he was reaching the end of his life. Jamie said:

“Before we were referred to St Barnabas, we had a family rota to make sure someone was looking after Dad at all times. This didn’t go to plan when Dad tried to go to the toilet on his own one night as he didn’t want to wake me after a busy day at work. Unfortunately he fell and it was a wake-up call that we just couldn’t cope on our own without extra support.

“From then on, St Barnabas took over Dad’s care and it felt like a weight had lifted. I had promised myself I would look after Dad until the end but the St Barnabas nurses were able to show me that it would be better for Dad if we all worked together. They were 100% right.”

“I can hand-on-heart say that without St Barnabas I’m not sure how I would have got through the last months of Dad’s life. The room which Dad was in was amazing, the support and care given to him was second to none and nothing was ever too much. The nurses supported me when I needed supporting and left me when I needed time alone. They just seemed to know what to do at all the right times. When end-of-life came, they knew all the right things to do to keep us calm and help us think about the next steps.

“One memory that sticks in my mind is about another family who were going through the same thing as us. The lady who was terminally ill wanted to be alive for Christmas but her family and St Barnabas nurses were aware that this would not be possible. The nurses arranged for her to have her own Christmas Day on 25th November. They came in wearing Christmas jumpers, brought presents and enjoyed all the fun and laughter of a normal Christmas with the family. What an amazing memory to leave that family with.”

Jamie has pledged to raise enough money for St Barnabas to cover every penny’s worth of care and support that was given to himself and his family. Jamie said:

“If I could have one more day with Dad, I’d want thank him for the legacy he has set up for our family and let him see his grandson, Jai, playing football. I’d want to hold him once more and tell him just how much I love him. There are always times when I miss his presence more as it’s hard knowing I can’t run decisions past him anymore and get his advice.”

St Barnabas Hospice provides free care to people across Lincolnshire living with a life-limiting or terminal illness and their families and carers. To find out more about the different ways we can help, visit www.stbarnabashospice.co.uk

Nigel, grandson Jai and son Jamie

Jamie running the Lincoln 10k

Pygott & Crone team after the Lincoln 10k

St Barnabas Lincolnshire Hospice scoops place in Top 100 Sunday Times Not for Profit Companies Awards.

February 25 2019

Local charity and healthcare provider St Barnabas Lincolnshire Hospice has been placed number 89 the Sunday Times Top 100 Not For Profit Organisations to Work for 2019 list.

The national accreditation is awarded on the results of an anonymous staff survey, which covers staff wellbeing, relationships, leadership and personal growth.

Announced on February 22, the ranking appeared in the Sunday Times publication alongside the National Trust, Great Ormond Street Children’s Charity and only six other Hospices.

With a workforce of over 300 staff and 1000 volunteers St Barnabas commit to providing a happy working environment, celebrating individual and collective success in all departments.

 

Lisa Phillips, Head of People and Development explains

“The independent survey took place with all staff throughout October 2018. We also completed a comprehensive organisational questionnaire showcasing the services St Barnabas provide, and what we do to support, recognise and reward our employees including a Reward and Recognition Scheme, flexible working practices, wellbeing support, a staff and management focus group.

I am so proud to have been awarded a One to Watch accreditation, placing 89th in the Top 100 and to have been ranked highly in the ‘areas of success’ – ‘great service to its customers, proud to work for the organisation, and the organisation has strong values and principles’ by our own team.”

 

Best Companies, the award body acknowledged St Barnabas staff agreed ‘People in my team go out of their way to help me.’ Best Companies noted ‘They recognise the power of community; building connections and relationships that help them make a positive contribution. They are one team, united and inspired by their common purpose’

 

Chris Wheway, CEO adds

“I am delighted that the support, the wellbeing and happiness of our team has been recognised. People are at the centre of what we do, whether that is the patient, their family or the team that make the service possible I am so proud to lead an organisation that has so many brilliant individuals, working together making a massive impact.”

 

St Barnabas supports more than 10,500 local people every year and delivers care to patients living with a life limiting or terminal illness and their families. Our ambition, for every patient we meet, is to enable them to live life to the fullest possible extent for however many days, weeks or months they have left.

This year it will cost over £11.5m to deliver our services. The NHS does give us some money, but we still need to raise at least £5.5 million. There are so many ways you can get involved and help us achieve our ambition.

Visit www.stbarnabashospice.co.uk for events, fundraising opportunities and how to volunteer. To join the team visit https://stbarnabashospice.co.uk/about-us/join-our-team/

Forget Me Not: Amy’s Story

“How many more days?” my Grandad Keith asked my Nanny Ann.
“Three” she replied. “Three days until Amy’s wedding.”
He gripped the arms of his chair and gave my Nanny a determined look.
“We’re going to do this.”

The morning of my wedding was one of mixed emotions. I knew that my Grandad was determined to see this day. Throughout the planning process I involved him in everything; showing him photos of my dress and even trying out the seats at the venue to make sure he had the best possible view.

St Barnabas had been supporting my Grandad at home. He was very unwell but he didn’t want to go into the Hospice until after my big day. His day-to-day care had been taken over by the nurses which enabled us to be a family in that time, rather than his carers. However, in the days leading up to the wedding, my Nanny was starting to get worried about getting Grandad ready.

Unable to stand, it would have been a huge job for her to lift and dress him, shave his face and make him look the part. Little did she know that soon we would receive a phone call that diminished our worries.

The St Barnabas nurses called us to arrange to come to the house to wash, dress and make my Grandad look and feel handsome on the morning of my big day. This enabled my Nanny to take her time, enjoy the process of getting herself all done up and allowed her to relax before the day ahead.

Everything fell into place and as I looked back down the aisle, there he was: in the ‘best seat in the house’ grinning from ear to ear.

A special dance was arranged for my Nanny and Grandad and not a dry eye was left in the house as they danced together to ‘Days of our Lives’ by Queen.

He felt proud and included and was able to join in the celebrations with our family. I think the secret red wine in his beaker may have helped too; I honestly thought it was juice!

When I look back now, following his death, amongst our happy memories together is his smile at my wedding day and I want to thank St Barnabas for their part in making that a reality.

I would like to invite you to dedicate your Forget Me Not in memory of someone special, like I have done for my Grandad. Every donation for a Forget Me Not will help raise much needed funds for more families like ours. Thanks to the incredible care and support from St Barnabas, we became a family again rather than Grandad’s carers. This allowed us to make the most of our time together and create the treasured memories we have today.

Amy King

Charity set up in memory of Stamford Mum to boost St Barnabas Hospice

A local man whose wife died from glioblastoma multiforme (GBM), an aggressive brain tumour, has vowed to raise money for St Barnabas Hospice, through a charity set up in memory of Stamford mum.

Italian born mother of three, Simonetta Cengarle died on 17th August aged 47, only nine months after being diagnosed.

Her husband, Toby Desforges vowed to honour her legacy and set up ‘The Tanto Cosi Trust’ to help support St Barnabas Hospice, Sue Ryder Care, The Brain Tumour Charity and projects which support the education of young women and girls.

The name ‘Tanto Cosi’ is Italian for ‘So much’ and would be used by Simonetta as a way of signing off letters to her husband.

Toby said: “Simonetta had the ability to leave a lasting imprint on the lives of all those that were fortunate enough to meet her. Her intellect, passion and humour were just some of her strengths. Simonetta was eloquent and imaginative but she was also down-to-earth and honest.

“When we got the news that Simonetta was going to die it would have been really easy to fall to pieces and panic but with the support of St Barnabas Hospice we were able to make the experience far less traumatic.

“Their Hospice at Home team in Stamford were in the best possible position to manage the situation and they provided me with the information and support I needed to understand what would happen and how we would manage.”

Simonetta had dedicated her life to improving women’s services around the world and in the years before her death, she had trained as a birthing doula and a breast-feeding counsellor.

Toby explained that once Simonetta was diagnosed with GBM she had often observed that she’d had a wonderful and fulfilling life.

He said: “Simonetta followed her dreams; she travelled widely, she read, she loved music, food, laughter and conversation but most of all she loved being surrounded by her beloved family and friends. In her last months of life, she had dedicated her time to her children, family and friends.

“Simonetta showed us all that half a life lived to the full is better than a full life lived only half-heartedly.”

Since its formation, the charity has held numerous fundraisers and raised a total of £12,000 with £2,400 donated directly to St Barnabas Hospice.

Toby said: “The nurses from St Barnabas were consistently good and always turned up when we needed them. They were genuinely caring, genuinely competent and genuinely concerned. They were exactly who we needed during a time that was emotionally and mentally exhausting.

“My only regret is that I didn’t contact St Barnabas sooner.”